Remembering Elli (by her dad)

The following was written by Scott, my husband and Elli’s father. On the first anniversary of Elli’s homecoming, Scott put his thoughts down in writing. He gave me permission to share it here.October 19, 2009One year ago today, our 8-year-old daughter,...

One Year Ago

One year ago today, my oldest daughter died in her sleep, in our home. She was 8 1/2 years old. She had fought hard for every breath she took. She was born with severe and complex congenital heart defects, suffered a brain injury resulting in severe cerebral palsy,...

Spread the Word – Stop the R Word

Spread the Word to End the Word is a National Awareness Day sponsored by the Special Olympics to raise the consciousness of society about the dehumanizing and hurtful effects of the word “retard(ed)” and encourage people to pledge to stop using the R-word.Respectful...

Elli’s Cardiologist Remembers Her Life

The other night, I was digging around in my laundry basket full of papers to sort through, and I found a copy of the remarks Elli’s cardiologist made at her service. He very thoughtfully sent us a copy for her scrapbook. I typed them out so I’d have a...

Our Last Family Portraits

We had this portrait made this summer. We had to cancel our travel plans because of major changes in the kids’ surgery schedules, so we enjoyed a week of local fun instead of a road trip. Looking back, I’m so thankful that we deliberately choose simple and...